I tried to see what help I could have from the local county Carers Association earlier this week, they said they weren't able to wave a magic wand and we needed professional help and sent a list of Care Agencies. When I get the opportunity I will contact Admiral Nurses again, they visited 20 months ago, she said I was doing a very good job, I was a strong person so would do nothing for the time being unless I contacted them again. I would like to know where we are medically with his condition. The Doctor says he is only responsible for prescribing the medication which doesn't seem to be creating any problems, there is nothing else to prescribe so there is nothing else he can do. In the meantime I carry on as his sole Carer 24/7. It is nearly 6 years now since I eventually got him to agree to seeking help, because at that point felt I needed support, and still can't get anyone to support me.
I nursed my Mother for 3 months when she was diagnosed Pancreatic Cancer, it was many years ago, my children were 3 and 6 at the time, and I can tell you it was easy, although very sad, in comparison with what I have had to put up with the last 6 years yet I can't get any help without paying out huge sums of money. Sorry to go on but I am getting stressed out.